tag:blogger.com,1999:blog-457189719291401386.post1723161973215720500..comments2023-04-28T02:50:12.274-05:00Comments on With Heartfelt Love: Pediatric Cardiology Conference Day 2Anonymoushttp://www.blogger.com/profile/00676819117875581935noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-457189719291401386.post-5510203241394087202010-11-14T12:10:48.504-06:002010-11-14T12:10:48.504-06:00One of the things we really wanted was a breakout ...One of the things we really wanted was a breakout of everything, just like you mention with the binder. One of the hardest things for us was to try to grasp and understand how long we might be in the hospital, when they might do the first surgery, etc. An estimate/average of time frames would've been nice, but I understand they probably don't want to give those types of things in the event that something happened and the child would be in longer. We also had the additional decision to make whether we would do the traditional Norwood or the Hybrid Norwood since our hospital (U of Minnesota - Amplatz Children's) offers both to all patients. <br /><br />After his birth, we really wished they would've given us a listing of all of the doctors that would be involved in Wyatt's care. It was so overwhelming to know who was who and what their roles were. I still, to this day, get bills for people that worked with Wyatt and I have no idea who they are. <br /><br />We also did not get sent home with a pulse oximeter and we do not have one. Since Wyatt had the Hybrid, he goes in weekly for echos and they check his sats then. He also has a homecare nurse that comes once a week to check his sats, weight, and vitals. <br /><br />At discharge, they pretty much just told us things to watch for (labored breathing, sweating while eating, blue gums/stomach) and gave us the numbers to call. <br /><br />That's about all I can think of right now. This conference sounds like it was so interesting!Jillianhttps://www.blogger.com/profile/08841091152117489792noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-84456558604813035062010-11-13T11:56:32.600-06:002010-11-13T11:56:32.600-06:00Thanks y really was searching for this on the web ...Thanks y really was searching for this on the web again thanks a lot and sorry for my bad english<br />i live in the Us what can you day about this doctors <a href="http://mychildrenschoice.com" rel="nofollow">Kids</a>Simbolhttps://www.blogger.com/profile/14562772452943367789noreply@blogger.com