tag:blogger.com,1999:blog-457189719291401386.comments2023-04-28T02:50:12.274-05:00With Heartfelt LoveAnonymoushttp://www.blogger.com/profile/00676819117875581935noreply@blogger.comBlogger353125tag:blogger.com,1999:blog-457189719291401386.post-83012229958248998802013-06-22T01:14:48.667-05:002013-06-22T01:14:48.667-05:00Hi Lisa,
Im glad you are all back home. I have bee...Hi Lisa,<br />Im glad you are all back home. I have been following Olivia's story. I came across your blog when I was looking for kids like my Elijah. HLHS/ transplant from Hope and Lurie's childrens hospital.<br />Elijah had on and off fevers last year, after so many tests-- we found out that he is neutropenic (sp) low WBC which is one of the side effects of cellcept. The transplant team then played around with the adjustments of his dosage. <br />Hoping that everything will be more than okay for the little miss.<br /><br />-Marihazel and ejhttps://www.blogger.com/profile/18394544760949630440noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-66581331046332860562013-05-08T07:57:24.917-05:002013-05-08T07:57:24.917-05:00beautiful and honest. our son has had the first 2...beautiful and honest. our son has had the first 2 surgeries and we aren't sure he is a candidate for the 3rd (he has HLHS). the doctor told me we are leaning towards a transplant DAYS before I read about the girl you are talking about. <br /><br />fear gripped me for awhile until i took back the reigns. I just can't let myself go there. Praying for your girl all the time. can't wait to see her move mountains!Nicolehttps://www.blogger.com/profile/00994937261069028024noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-47256339632876405082013-05-06T08:12:27.273-05:002013-05-06T08:12:27.273-05:00I don't mind at all, share away!I don't mind at all, share away!Anonymoushttps://www.blogger.com/profile/00676819117875581935noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-17850793436516908742013-05-06T07:32:57.917-05:002013-05-06T07:32:57.917-05:00<3 Love this! <3 I hope you don't mind, ...<3 Love this! <3 I hope you don't mind, I shared it. :) Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-10917123305106131912013-04-30T15:05:21.047-05:002013-04-30T15:05:21.047-05:00YES! Yes she most definitely is!!! YES! Yes she most definitely is!!! Amy Bennetthttps://www.blogger.com/profile/06256967321013244018noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-61231849879710051922013-03-27T07:18:55.935-05:002013-03-27T07:18:55.935-05:00Happy 3rd Birthday Miss Olivia! May God continue ...Happy 3rd Birthday Miss Olivia! May God continue to bless you and keep you safe. We love you, Keaton kisses!!Di, Proud HLHS Momhttps://www.blogger.com/profile/01209977721364278879noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-63886789083033078102013-03-05T19:14:05.675-06:002013-03-05T19:14:05.675-06:00I love you friend. I love you friend. Melissahttps://www.blogger.com/profile/13616862297272550495noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-53500744292753494042013-02-13T05:59:24.530-06:002013-02-13T05:59:24.530-06:00She looks so amazingly beautiful! I can't ima...She looks so amazingly beautiful! I can't imagine how you felt last week, but I do understand how you wouldn't know...she looks PERFECT!<br /><br />You all remain in my thoughts and prayers all the time. I try to keep up on Facebook, but I had to check out the blog today.Wodzisz Familyhttps://www.blogger.com/profile/03402962907991995167noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-83378449598670707362013-01-31T18:15:36.070-06:002013-01-31T18:15:36.070-06:00Go Olivia Go!! <3 Much love and Keaton kisses ...Go Olivia Go!! <3 Much love and Keaton kisses to his whole-hearted girlfriend!Anonymoushttps://www.blogger.com/profile/07851412819512429763noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-21595800904070504122013-01-31T17:24:30.527-06:002013-01-31T17:24:30.527-06:00I am so happy for her and will continue to pray fo...I am so happy for her and will continue to pray for her moving on from here...Im sure this is so overwhelming for you in the best way. ;) And I didnt know it was 1 in 100!!! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-57593587214238845442013-01-24T08:32:53.477-06:002013-01-24T08:32:53.477-06:00I am so glad to read that her appointment went wel...I am so glad to read that her appointment went well. We usually have the echo first, so Hope's crankiness lasts for the whole <a href="http://signsofliverdamage.blogspot.com/" rel="nofollow">Treatment of hepatitis c</a> thing...unless they sedate her. Have fun at the picnic...everyone will LOVE seeing her!Anonymoushttps://www.blogger.com/profile/04355484079623349996noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-17490415466243567782013-01-21T02:15:12.145-06:002013-01-21T02:15:12.145-06:00Gosh, what an incredible update. Livvy is such an...Gosh, what an incredible update. Livvy is such an amazing miracle - I sure hope she and Bodie can meet one of these days!!!Amy Bennetthttps://www.blogger.com/profile/06256967321013244018noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-65157030167999668332013-01-16T09:46:02.755-06:002013-01-16T09:46:02.755-06:00Great news! You go Liv! :) Great news! You go Liv! :) Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-33722445678644326532013-01-16T07:29:54.563-06:002013-01-16T07:29:54.563-06:00Such excellent news!!! So happy for you all!
G...Such excellent news!!! So happy for you all! <br /><br />Gabe had a cardiology appointment (we are prefontan and not sure he will be eligible for it) yesterday and it went wonderfully too. Thank God for healthy babies!Nicolehttps://www.blogger.com/profile/00994937261069028024noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-82161994567896912132013-01-04T07:29:50.139-06:002013-01-04T07:29:50.139-06:00Woohoo! You go girly! Glad things are going well! ...Woohoo! You go girly! Glad things are going well! <3Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-91902801489834500542012-12-11T14:35:59.282-06:002012-12-11T14:35:59.282-06:00What a HUGE blessing!
YOU GO OLIVIA!!!What a HUGE blessing! <br /><br />YOU GO OLIVIA!!!Nicolehttps://www.blogger.com/profile/00994937261069028024noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-80629792567252784992012-12-10T15:16:58.803-06:002012-12-10T15:16:58.803-06:00I just found your blog though another heart blog. ...I just found your blog though another heart blog. We adopted a baby with HLHS right after his second surgery. We were planning for him to have the third in the next year (he's about to be 3), but his heart function is low and his Dr. doesn't think he is a candidate for the 3rd surgery. Which leaves transplant as his only option. <br />He is doing amazing right now. Strong, healthy, and growing. If it wasn't for his scar, you'd never know how sick his little heart is. <br />I'm looking forward to following (and going back to read it all) your sweet girl's story. Transplant scares me and seeing your girl looking so wonderful just a week after her surgery is VERY encouraging! Thank you for sharing your girl.Nicolehttps://www.blogger.com/profile/00994937261069028024noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-67793591925023609952012-12-10T07:50:20.481-06:002012-12-10T07:50:20.481-06:00Wow- all in the course of only three weeks- that&#...Wow- all in the course of only three weeks- that's crazy! So happy to hear that you all are getting one big step closer to home tomorrow!! :)Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-29039329415232547652012-12-07T12:56:09.603-06:002012-12-07T12:56:09.603-06:00You are truely amazing thanks for sharing your sto...You are truely amazing thanks for sharing your story I am so happy liv is doing great..we ate also a hlhs family my son Armani is 11 years old and we are currently awaiting a heart transplant in the near future. u give me hope thanks.we also go to luries n Dr wax is our cardiologist...thanks for updates..Anonymoushttps://www.blogger.com/profile/01121884743204388197noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-58329501146183322822012-12-05T12:23:14.494-06:002012-12-05T12:23:14.494-06:00Oh my gosh, she is SO amazing! Look how good she l...Oh my gosh, she is SO amazing! Look how good she looks! I LOVE it!!!Amy Bennetthttps://www.blogger.com/profile/06256967321013244018noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-10520372161664666802012-11-30T09:41:53.233-06:002012-11-30T09:41:53.233-06:00I agree with your mom, I like this format better:)...I agree with your mom, I like this format better:) Go Olivia!dancerbellehttps://www.blogger.com/profile/10463145987037717255noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-17295480082604292692012-11-30T08:18:42.578-06:002012-11-30T08:18:42.578-06:00Oops- deleted my comment by mistake. So glad to he...Oops- deleted my comment by mistake. So glad to hear Liv is doing so well! Keep up the good work girlie! Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-14465871108863802732012-11-30T08:17:04.741-06:002012-11-30T08:17:04.741-06:00This comment has been removed by the author.Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-89979747804946762612012-11-29T06:10:34.107-06:002012-11-29T06:10:34.107-06:00I've been following for a while - I'm a fe...I've been following for a while - I'm a fellow heart mom. My son (6 years) has tetralogy of fallot, pulmonary atresia, and pulmonary hypertension. Just wanted you to know that I am thinking about your precious daughter and I am so thrilled that she is doing so well. I'll be keeping my fingers crossed that the vent can come out today and stay out!!!Kellyhttps://www.blogger.com/profile/18373155608178794043noreply@blogger.comtag:blogger.com,1999:blog-457189719291401386.post-80090282870637578942012-11-29T01:55:08.206-06:002012-11-29T01:55:08.206-06:00What an awesome thanks giving gift!! God sure is g...What an awesome thanks giving gift!! God sure is great and everything is possible by him!!!Alicehttps://www.blogger.com/profile/01484596836892530980noreply@blogger.com