I should have known that Olivia was going to take after me today when I really had to drag myself out of bed this morning. By the time Brian and I got over to the hospital, her chest tubes that were draining fluid off her lungs had been pulled which is good progress but she was having a fit. Once the nurses got her settled down for the day she slept the entire day away with the exception of a few times where her O2 sats dropped pretty substantially.
The reson for the drops? Just the medical team going about their daily routine of either changing her positions, suctioning her or just maintaining her lines. She was so fed up with medical intervention after the tube removal this morning that she just didn't want to be bothered. Apparently while we were out to brunch, she took an opportunity to get so mad that she turned herself blue. I'm sort of glad that I missed that particular episode. Her cardiologist isn't really concerned about the de-sats at this point, but it has changed the plan for the vent removal for tomorrow. That's definitely on hold until Tuesday at the earliest. This is just another indication that we move at Olivia's pace and that can vary greatly from one day to the next. I for one am starting to get a little impatient, not that I want to rush her progress by any means, but it is frustrating for me to sit by and watch her on this cycle.
Olivia clearly wants to stop being messed with by the doctors and nurses on an hourly basis, but we can't get there unless she makes some benchmarks which require the intervention of the medical staff. Each time she gets upset, she's putting herself a little further back in the timeline. It's not like I can sit there and explain it all rationally to her, it's just something that we have to play the "wait and see" game. My hopes for tonight are that she sleeps soundly and continues to get the rest that she needs to get ready for removal from the vent, bigger feedings and maybe some more medication removals!