Today marked the last time that our at home nurse Nancy will be making a house call. Olivia is doing so well by her standards that she is discharging her from their home services; and from what I've been told she won't need to come back and visit us after the Glenn as the babies are traditionally more stable. We shall see, I'm not counting any chickens before they're hatched. Still no word from Hope yet as to a date for the heart cath, but hopefully we'll hear from them tomorrow or Thursday. I'm not looking forward to it, so I don't want to call looking to get her in, yet on the other hand I do have to go back to work soon and want to try and have it done before I'm back in the office.
In other news, I've been back into all the mom's boards for heart babies and a lot of the recent discussion has been a lack of research dollars for CHD's. It is a common belief and I tend to agree that some of these babies like Olivia look so healthy and normal that people find it hard to believe that anything could ever be wrong with them. Since the kids don't look the part, there is less interest in donating money towards the cause. Now, let me explain, I by no means want Olivia or any other heart baby to look sickly to draw up interest or money for research. Nor do I think that childhood cancers deserve any less money than what they are given annually, but I wish I could come up with some sort of non-exploitive way to draw awareness to how serious CHD's can be on kids and adults. I read a figure today that I couldn't verify but nevertheless I will post here because it was eye opening. The claim is that there are twice as many deaths annually from CHD's as there are from childhood cancers in any patient from birth to age 18.
Lastly, I meant to bring it up in previous posts, but if any of you are interested in helping out your local Ronald McDonald House - you can collect pop tabs and take them to the facility. They take the pop tabs and get reimbursed for the pure aluminum to raise funds for the houses. Every little bit helps!