For any CHD parent that may be reading this - please do not interpret my statement to mean that I blame the Fontan. I don't. Like any surgical procedure, most work - some don't and the Fontan didn't work for Olivia. She was ready for it, the tests all said that she was and I still have the utmost faith in her doctors at Hope always making the right decisions for her if she were ever to be in their care again. (They don't have a transplant team so that's unlikely right now).
1 in 100 babies are born with a Congenital Heart Defect. That is and will always be a part of what made Olivia the sweet, feisty girl that she is today. Spread Hope, Spread Awareness.