Thursday, July 1, 2010

Big Day Tomorrow

We are starting off the day at the Ped's office for a normal weigh in check up.  Since our last routine peds visit we have put Liv on breastmilk fortified with soy formula, taken her off of that because it upset her tummy all the way to me giving up all dairy products, and then dealt with her small appetite after the heart cath last Friday.  Given all of the changes that I just mentioned, I fully expect to be told that her growth has slowed too much from our last visit and that we'll need to come up with a new game plan to ensure her calorie intake is high enough.  While I welcome the suggestions some of it is easier said than done.  We have been waking her up if she goes too long without a feeding, increasing the oz of a few bottles throughout the day and trying to increase the frequency as well.

After the peds appointment we're off to Hope to meet with Dr. Husayni and discuss the Glenn and set a date for the actual surgery.  I think Brian and I are on the same page regarding the surgery, we're not looking forward to it, but the sooner we get it done the better so Olivia can have more than a year without another major procedure and she can get on with enjoying life.  For now she's checking out her hands opening and closing them all day long and trying to put them both in her mouth at the same time. 

Tonight I'm going to watch Boston Med on ABC at 9 CST because they're featuring a family with an HLHS baby.  While I sort of think it's strange to sit down and watch another family living and dealing with a heart baby that has the same diagnosis as Olivia, we each have our own unique story. 

Tomorrow will also mark the first angelversary of Kaia, the inspiration behind Little Lion Designs.  Her mom, Stephanie, has taken the loss of her daughter and channeled it into a creative way that carries Kaia's memory.  I know I've mentioned that we have a piece of fabric art that Stephanie made for Olivia so our two baby girls are forever bonded.  Please keep Kaia and her family in your minds tomorrow. 

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