- Identify that there's a serious problem with an organ either in you or your child that without medical attention will most certainly be fatal
- Find the best medical center in your geographic area to treat said medical problem
- Allow medical team to conduct all sorts of invasive tests and bloodwork; if there's a problem found here, advance three steps
- If the tests and bloodwork don't provide any clues towards the origin of problem in #1, then move back two steps
- In the meantime, pull a new card and wait on insurance to grant approval for the needed transplant
- Simultaneously wait on a group of multi-disciplinary experts to convene and review all labs and tests to unanimously agree that there is no other option than transplant
- If 5 and 6 do not align in agreement of a transplant, go back three more steps
- If steps 5 and 6 do align in agreement, officially get listed on the organ transplant list
- Wait
- Wait
- Hopefully organ arrives, Pass Go (details are sketchy to me now, do you get anything once you go completely around the board?)
- Recover
- Recover
- Test, test and re-test looking for signs of rejection
- Live life
- Breathe
Cinder-Livvy
Monday, November 19, 2012
The Game of Life
What I have come to find in the last 9 days is getting everything lined up is very much like the game of Life. Here is how I see it in simple terms (and by no means to I intend to be flippant or insensitive to the grief and agony these steps have caused many families) - this is just how I process the whole ordeal:
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